Category Archives: MS

10 Things I’ve learned about living with invisible illness

I have been living with invisible illness {diagnosed} since 2008.  Chronic pain, fatigue and bizarre symptoms are part of my everyday life.  Statistics tell us that 1 out of every 2 Americans lives with a chronic illness {diabetes, lupus, fibromyalgia, rheumatoid arthritis, multiple sclerosis, etc.}   I know I am not alone.  So, why do I…

Parenting and illness

There is a sad story circulating the news outlets that has mothers {including myself} outraged.  A judge in North Carolina has taken primary custody of a mother’s young children away, mostly because she is battling stage 4 breast cancer. {A summary of the story and other posts on the web can be found here.} While…

Fighting the Frump and Fatigue

Today’s topic for Wifey Wednesday: Caring for our Appearance. OUCH! As I sit here in my Old Navy sweatshirt and ratty yoga pants, I needed to read this today.  I had another marriage post planned that I will publish in the future but felt convicted to write about this topic for those of us living…

The Great Physician

I am not used to good news from the doctor (and when I say doctor I mean any of the dozens of “ologists” I see on a regular basis). This recent liver problem was discouraging to me and the prognosis and outlook were dismal each time it was discussed with any of the “ologists”. BUT…

Peace and Quiet

Thank you all for your prayers.  I had a great time speaking at a local father/daughter banquet last Friday evening and God granted me not just the words but the stamina to deliver them. I am in a place of rest, quiet and peace.  A beautiful place to be, honestly.  Different circumstances would be preferable…

Medicare and Privilege

Yesterday, something came in the mail for me. It looked like this… Many emotions swirled in my mind and heart.  Most of them related to self pity about my disability(s) and the seeming prematurity of needing Medicare. I loathe self pity.  So, I turned to God for an attitude check.  He is always faithful in…

Legacy of Caring

I was recently in NYC for a blogging/social media conference.  Johnson and Johnson was there and requested some bloggers to make videos describing something that they care about.  Naturally, those living with chronic illness are frequently on my heart {although I had to quickly decide to talk about that OR foster care OR human trafficking…

Random Musings

First of all, I am honored to have been nominated for a CEO (Chief Executive Organizer) SocialLuxe blog award (sponspored by Avery) for my organizing blog!  I am so excited and would be ever so grateful if you would click here to vote for me (once daily) through July 12th.  Next, July is a crazy…

Listening to the still, small voice

I have been having some (not so fun) issues with my left leg in the last few weeks.  My doctor(s) attributed it to my MS and put me on a steroid dose pack.  While that reduced the swelling on the MRI, it did not resolve the problem.  What is the problem? Muscle atrophy. Atrophy (according to…

Flowers fade

I am not a gardener. I am pretty sure both my thumbs are black. When we downsized and moved in December, I didn’t pay much attention the landscaping on our new home’s lot. I was so pleasantly surprised a few weeks ago when pretty pink bushes bloomed out front.  A luscious purple bush in the…