Invisible Tuesday

Some of you know that I host a MomTV show on Wednesdays (at 1pm EST) called The Invisibles. The show focuses on living well with chronic/invisible illness.  To help my listeners and to educate my readers, I am going to start posting on the same topic that my show will focus on each week on Tuesdays.

theinvisiblesTomorrow’s show topic is Minimizing the Impact of Your Illness on Your Loved Ones.  Here are some tips related to what I share on the show.

  • Your family member’s are not stupid, don’t treat them like they are.  Don’t say “I’m fine” if you aren’t.  Trust is an important component of family life.  Don’t become someone your family doesn’t trust.
  • Remember that there are things children do not need to know specifics about (including finances and treatments)
  • Resist the temptation to downplay your hubby’s headache when everything on your body hurts. Don’t make it a “one up” type of situation.
  • If you lash out in anger, forget something important, etc.- apologize.  Don’t apologize for your illness but for your behavior.
  • Plan your day so that you are at your best when you are around your family.  If that means taking a nap before they get home, it is worth it.
  • Don’t buy in to the lie of the Devil that you are a burden or problem to your family. They love you and need you.
  • Reach out.  Don’t shut out.

For all my tips and thoughts on this subject watch the Invisibles tomorrow.

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  • Winsor Pilates
  • Thanks for the great tips! I've been living with lupus for over 10 years, but I still have a tendency to say "I'm fine" when I'm not and to push myself til I'm at the brink of exhaustion and then pay for it for the next two weeks! I just started to follow your blog and I'm looking forward to reading more!
  • These are all great tips to remember. My mom is always in pain...but never complains and just keeps pushing herself. I want her to slow down...got any advice for that? Should i just let her keep going?
  • I LOVE that 1st tip!! I hate it when I know something is wrong with my mom and she says "Im fine"!! Its really annoying!
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